Our son Simon Gabriel Bazouni was diagnosed with Cystic Fibrosis (CF) at 15 months old.
At the time of his diagnosis my husband and I never knew we were carriers of the CF gene, and with less than 4 weeks to go to give birth to our second child Savannah, it was a day that we both will never forget and was the most devastating day of our lives.
Supporting our son in this battle against CF has had its ups and downs and by far has been the most difficult journey.
For the past 2 years we've had to do his treatments daily, constant clinic visits at the hospital and his had one admission into hospital.
At first we struggled to adjust to the new norm and at times it felt impossible to get the job done. With a newborn child and the early stages of diagnosis at times it felt like the whole world was on our shoulders.
In time we eventually realized this is the path that God has written for us and it's what we choose to do along this journey that matters. It was our faith and prayers that has lead us to where we are today and that's why we created TEAM SIMON.
In 2016 we raised just under $30,000 by participating in the 65K 4 65 Roses Walkathon, and our team is still growing. We were touched by everyone's generosity who donated and some of those people we had never met before.
Our goal for 2017 is to aim for $50,000. We want to show and educate people about the life with CF and to spread awareness.
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Cystic Fibrosis = Team Simon has been set up to tell our sons story through his eyes and to share with you both the negatives and positives that come with CF, but most importantly to raise awareness in the hope to find a cure someday.
It's our job as parents to ensure Simon lives a healthy and fulfilling life but most importantly to embrace life with two hands and to always remember to remain humble and believe in God. God never leaves us and as long as we have faith the IMPOSSIBLE will always become the POSSIBLE.
Please help us make a difference to children and families with Cystic Fibrosis.
Cystic Fibrosis (CF) is the most common inherited, life threatening condition affecting young Australians. CF is life shortening and there is no cure.
All money raised from the 65K 4 65 Roses Walkathon will go towards helping the Children's Hospital at Westmead and CF NSW provide vital support to those with CF.
Every little bit counts and with your help we can make the IMPOSSIBLE, POSSIBLE.